Friday, January 26, 2007

Welcome to my sleepy world

Hello, thanks for stopping by. I am starting this blog basically to vent a lot of my frustrations with Narcolepsy. But I hope that it may be helpful, informative, and entertaining as well. Let's face it on the surface Narcolepsy is funny. Even just the word itself is funny:

Nar-co-lep-sy.
The symptoms, particularly cataplexy, have provided my friends with hours of amusement. Once I even won $5 on a bet that I could not really fall asleep in under five minutes. Narcolepsy also gave me an excuse to sleep through half of my college classes, especially the ones at 7am (I managed to graduate with honors, but it was in something that was known as one of the easiest degrees around). My friends used to say I learned through osmosis, sleeping on all my books. Often I would wake up to find they had written funny things on my notepads while I slept through a lecture. My notes always trailed off the page as I got sleepier and sleepier. At the time, and I'm sure even more so now, I was able to buy the professors lecture notes at the copy place down the street. I'm really not sure why they made us go at all.

But this is just the intro post, I'll get into more detail on all of these topics as I go.
Enjoy, and please post comments!

4 comments:

yawningdog said...

Funny, my friends used that osmosis line on me in college as well.

They kept telling me I had narcolepsy. I didn't get a doctor to say that until 16 years later.

Gazapo said...

I imagine that it would be frustrating to be sleepy a lot; you never really complain about it though, maybe you should bitch about it more at ladies meeting; we all complain! and we don't have to cope with being sleepy while trying to deal with our lives.

Anonymous said...

Hi Sleepy girl, I'm recently divorced on quite possibly on the road to divorce because of how neglected my husband has felt. I'm a little obsessed about how I devloped it, not that it would change anything. I'm on provigil and it's working well so far. No cataplexy. I just thought it was normal that a 28 year old's favorite hobby was sleeping. I thought it was normal to spend Friday and Saturday nights dozing off in bed. I'm angry and frustrated because none of this has to do with my husband, but he's gotten the brunt of the lonliness and neglect and I can't convince him that it's not an excuse, my brain is screwed up. My self-esteem is shot, I'm overweight and I don't no anyone who has experienced this and there are no narcolepsy support groups in my area (that I can find). I'm so angry and so confused. I feel more awake on this medicine then I have in years. He actually said, you can stay awake at work, you can stay awake on vacation, but you can't stay awake for me. Like I'm choosing to sleep over him!

A sleepy Girl said...

Anonymous,
I have felt all that you expressed. My future ex husband and I met 10 years ago when I was 21. I was a different person then. I vaguely remember not being a sleepy girl. Sometimes I try to convince myself that everyone changes this much in this amount of time, but I think I have changed in different ways than the non chronically sleepy. (lol)
What I feel the most guilty about in regards to our relationship not working is that I feel like I just didn't have the emotional or physical energy to do the little things on a daily basis and the big things make it work, to fight for it not to end. The little girl inside me that grew up believing the fairy tales and with parents that are still married keeps saying that it shouldn't be a fight, that it shouldn't be this hard to keep a relationship together. But I don't believe that is true, and my biggest fear is that I just don't have the fight left in me, that I will never be able to give someone enough.
Sorry to be such a downer.
A sleepy girl
asleepygirl@gmail.com